Parents of children with special needs often face unique challenges, and it’s vital for them to have educational resources and a caring network of support. CRCC’s nurses, teachers and therapists are available to answer questions, link families to community services, listen to family members’ concerns and provide consultation and training as needed.
If you’re looking for information or services, CRCC’s community care coordinator is available at no cost to help connect you with resources, support groups, funding and information. To speak with a care coordinator, call 402.895.4000.
Family Advocacy series
Families of children with special needs face unique challenges related to care, finances and advocacy, and COVID-19 has compounded their struggles. The CRCC Family Advocacy series helps educate and empower families, caregivers and educators to better care for children.
The series allows families and the public to interact with a variety of experts in early childhood development and education via monthly, one-hour virtual sessions. Events are designed to provide practical tips and resources for parents and others concerned with early childhood development and education in a casual and interactive format.
Family Focus events
Family Focus events bring families in our community together who are facing similar challenges. These typically free, family-friendly events provide families with a great opportunity to draw strength and knowledge from each other, relax, socialize and have fun.
Family Focus events are made possible by the Enrichment Foundation and in collaboration with United Cerebral Palsy of Nebraska.
It can be helpful to refer to a developmental checklist to get a sense of the skills your child should be developing and on what timeline.
If you have any concerns, you should talk with your child’s pediatrician. Every child is different, including the order and pace at which they develop skills. Your child’s pediatrician is a great resource for helping you evaluate if your child would benefit from receiving therapy to further develop their skills.
Additional resource links
- Autism Action Partnership
- Project Harmony
- Ollie Webb
- Early Childhood Development Network
- Parent Training Institute
- The Collective for Hope
- United Cerebral Palsy Network of Nebraska
- Department of Health and Human Services Nebraska
- Social Security Disability and Resource Center
- American Diabetes Association
- National Organization for Rare Disorders, Inc.
- Nebraska Resource Referral
- Cerebral Palsy Group
- Progressions a Shaken Baby Syndrome support group
Tools and guides
- Birth Injury Guide
- My Healthfinder: health.gov
- Cerebral Palsy Guide
- A Parents Guide to Protecting Their Kids Online
- How to Support Students with Autism Spectrum Disorder
- What Causes Infant Paralysis?
- Digital Resources for Students with Autism
- How to Sew a Weighted Vest
- Wearing a Weighted Vest for Cardio: Pros and Cons
- How to Make a Weighted Blanket Sewing Tutorial
- How to Make a Resistance Tunnel
- Car Seat Safety: kidshealth.org
- Car Seat Safety: National Highway Traffic Safety Administration
- Therapeutic Brushing Techniques
- Shoes for use with AFOs
- Adaptive Equipment for Children with Special Needs
- Water Safety Guide for Children With Special Needs
“The Out-Of-Sync Child: Recognizing and Coping with Sensory Processing Disorder” by Carol Kranowitz
“The Out-Of-Sync Child Has Fun: Activities for Kids with Sensory Processing Disorder” by Carol Kranowitz
“Growing an In-Sync Child: Simple, Fun Activities to Help Every Child Develop, Learn, and Grow” by Carol Kranowitz and Joyce Newman
“Sensational Kids: Hope and Help for Children with Sensory Processing Disorder” by Lucy Jane Miller
“Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues” by Lindsey Biel and Nancy Peske
“Understanding Your Child’s Sensory Signals: A Practical Daily Use Handbook for Parents and Teachers” by Angie Voss
“The Survival Guide for Traveling with a Sensory Kiddo: From Amusement Parks, to the Beach or a Weekend Road Trip to Visit Relatives… Sensory Help is Here!” by Angie Voss
“Your Essential Guide to Understanding Sensory Processing Disorder: When You See A Child Through Sensory Goggles… It All Makes Sense” by Angie Voss
Cerebral Palsy and Movement Issues
“Teaching Motor Skills to Children with Cerebral Palsy and Similar Movement Disorders: A Guide for parents and Professionals” by Sieglinde Martin
“Finnie’s Handling the Young Child with Cerebral Palsy at Home” by Eva Bower
“Children with Cerebral Palsy: A Parent’s Guide” by Elaine Geralis
“Understanding Motor Skills in Children with Dyspraxia, ADHD, and other Learning Disabilities: A Guide to Improving Coordination” by Lisa A. Kurtz
“Understanding Dyspraxia: A Guide for Parents and Professionals” by Maureen Boon
“Visual Perception Problems in Children With AD/HD, Autism, And Other Learning Disabilities” by Lisa A. Kurtz
“Little Bear Sees: How Children with Cortical Visual Impairment Can Learn to See” by Aubri Tallent, Andrei Tallent, and Fredy Bush
“Children With Visual Impairments: A Guide for Parents” by M. Cay Holbrook
“Look At It This Way: Toys and Activities for Children with Visual Impairment” by Roma Lear
“Black on White” board book by Tana Hoban
“White on Black” board book by Tana Hoban
“Look, Look!” board book by Peter Linenthal
“Fine Motor Skills for Children With Down Syndrome: A Guide for Parents And Professionals” by Maryanne Bruni
“Gross Motor Skills for Children With Down Syndrome: A Guide for Parents And Professionals” by Patricia Winders
“Early Communication for Children With Down Syndrome: A Guide for Parents And Professionals” by Libby Kumin
“Down Syndrome Parenting 101: Must-Have Advice for Making Your Life Easier” by Natalie Hale
“Just take a Bite: Easy Effective Answers to Food Aversions and Eating Challenges” by Lori Ernsperger and Tania Stegen-Hanson
“Finicky Eaters: What to do When Kids Won’t Eat” by Lori Ernsperger and Tania Stegen-Hanson
“Nobody Ever Told Me (or my Mother) That!: Everything From Bottles and Breathing to Healthy Speech Development” by Diane Bahr
Memoirs and Inspiration
“Chicken Soup for the Soul: Children with Special Needs: Stories of Love and Understanding for Those Who Care for Children with Disabilities” by Jack Canfield, Mark Victor Hansen, Heather McNamara, and Karen Simmons
“Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives” by Kathryn Lynard Super and Martha Sears
“Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic” by Martha Beck (about down syndrome)
“Knowing Jesse: A Mother’s Story of Grief, Grace, and Everyday Bliss” by Marianne Leone (about CP)
“Shut Up About Your Perfect Kid: A Survival Guide for Ordinary Parents of Special Children” by Gina Gallagher and Patricia Konjoian
“More Than a Mom: Living a Full And Balanced Life When Your Child Has Special Needs” by Heather Fawcett and Amy Baskin
“Married with Special-Needs Children: A Couples’ Guide to Keeping Connected” by Laura E. Marshak and Fran P. Prezant